STORIES OF HOPE

Every person and every story matters to us because everything we do is meant to help people living with feeding tubes thrive. What does thriving look like? Read for yourself. Be inspired. Share the hope.

STORIES OF HOPE

Every person and every story matters to us because everything we do is meant to help people living with feeding tubes thrive. What does thriving look like? Read for yourself. Be inspired. Share the hope.

STORIES OF HOPE

Every person and every story matters to us because everything we do is meant to help people living with feeding tubes thrive. What does thriving look like? Read for yourself. Be inspired. Share the hope.

Micah’s Story

He’s thriving!

In December of 2019 Micah was diagnosed with stage 4 adrenal cortical carcinoma. He was given a very poor prognosis of less than 10%. We were given a protocol that was highly toxic. 3 extremely harsh inpatient chemotherapies, and a daily chemotherapy that is a derivative of DDT, a banned pesticide. I knew he would need to be supported well and we needed to think outside of the box to make his prognosis one of hope instead of devastation.

He was very sick the first two rounds of chemo. We had a Gtube placed and whole food organic nutrition was a primary focus. We discussed our desires with the nutritionist and her options weren’t what we were looking for. We spoke with another doctor on our team. They began to discuss what was best for Micah. A doctor from the hospital used liquid hope for his child and donated to us several boxes. Within a week we saw a difference. Our hospital wrote the prescription and we were then transferred to St. Jude.

We continued on with functional formularies alternating between nourish and liquid hope. He never lost a pound, his digestive system worked as it was intended, he didn’t have neutropenic fevers, and his counts always recovered on time. We were able to run his feeds high even on chemo. It was an incredible fit for him and he was supported well.

He was NED by the 4th round of chemo. The doctors were not expecting this at all. They were pleasantly surprised. By his 7th round they were very encouraging with the integrative plans that we had set into place for Micah. Nutrition is always our most important goal.

We are thankful for the team that we have worked with in both the medical and integrative realms. We’d really love to see these two worlds come together to provide better support through harsh treatments, and overall better outcomes. We agree that we should , “Let food be thy medicine” at least a huge portion of it.

We are thankful we have Functional Formularies for Micah. He’s thriving and even hit 50lbs recently! The perfect weight for a healthy five year old. He loves to be outside, plays soccer, baseball, and anything “Ninja-Kid” related. He was made for Miracles. We believe we all are when given what our bodies truly need.