PRESLEIGH’S STORY

 

 

 

PRESLEIGH’S STORY                        

In the summer of 2017, Presleigh went through a series of tests in preparation for a G-tube to be placed. She had always been a great eater, and LOVES her food! After about 4 years of no weight gain, at 8 years old, she still weighed just 33 pounds.

Then in November, Presleigh was diagnosed with seizures. I honestly thought that I was going to lose her on the day that she had a seizure lasting for 50 minutes. In December, we received another diagnosis of Long QT Syndrome. This was like going through her Rett Syndrome diagnosis all over again. I felt the time was right, now more than ever, for Presleigh to have a G-tube placed for weight gain, and to improve her overall health. We scheduled the surgery for January 16, 2018. The surgery went great, and I met with a nutritionist to discuss which tube feeding formula I wanted Presleigh to be on. My first choice was Liquid Hope meal replacement. I was told that it wouldn’t be covered by Presleigh’s insurance, but we could use Compleat® Pediatric tube feeding formula... that “this was very similar to Liquid Hope”. I did my research, and there is absolutely no comparison to Liquid Hope!! It was our only choice, however, so I started Presleigh on Compleat® with much hesitation.    I even tried blending her food myself, but it wouldn’t pump through her tube.

One month after Presleigh’s surgery, we found out that we won an ENTIRE YEAR’S supply of Liquid Hope! I was in tears! She was finally going to get the nutrition I’d been wanting her to have all along.

It’s now April 24, and Presleigh is feeling great! This is truly amazing! Functional Formularies has given Presleigh her health back in so many ways!! I will never be able to thank them for giving life back to my daughter, and hope back to our family. She is healthier than she’s been in years, and I’m giving credit to this company for their amazing product, Liquid Hope.